Protecting privacy and family life in the era of recreational genetics and big data

Abstract: Since the complete sequencing of the human genome was achieved, genetic information has become a valuable asset. Big databases are built to collect and analyze human genetic information. Some of these biobanks collect genetic information through online websites, offering direct-to-consumer...

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Detalles Bibliográficos
Autor principal: Lafferrière, Jorge Nicolás
Formato: Artículo
Lenguaje:Inglés
Publicado: William S. Hein & Co., Inc. 2019
Materias:
DERECHO DE FAMILIA
BIG DATA
GENETICA
PRIVACIDAD
VIDA FAMILIAR
GENOMA HUMANO
INFORMACION GENETICA
PUBLICIDAD
Acceso en línea:https://repositorio.uca.edu.ar/handle/123456789/3131
Aporte de:
Repositorio Institucional de la Universidad Católica Argentina (UCA) de Universidad Católica Argentina
id I33-R139123456789-3131
record_format dspace
institution Universidad Católica Argentina
institution_str I-33
repository_str R-139
collection Repositorio Institucional de la Universidad Católica Argentina (UCA)
language Inglés
topic DERECHO DE FAMILIA
BIG DATA
GENETICA
PRIVACIDAD
VIDA FAMILIAR
GENOMA HUMANO
INFORMACION GENETICA
PUBLICIDAD
spellingShingle DERECHO DE FAMILIA
BIG DATA
GENETICA
PRIVACIDAD
VIDA FAMILIAR
GENOMA HUMANO
INFORMACION GENETICA
PUBLICIDAD
Lafferrière, Jorge Nicolás
Protecting privacy and family life in the era of recreational genetics and big data
topic_facet DERECHO DE FAMILIA
BIG DATA
GENETICA
PRIVACIDAD
VIDA FAMILIAR
GENOMA HUMANO
INFORMACION GENETICA
PUBLICIDAD
description Abstract: Since the complete sequencing of the human genome was achieved, genetic information has become a valuable asset. Big databases are built to collect and analyze human genetic information. Some of these biobanks collect genetic information through online websites, offering direct-to-consumer genetic testing. People receive advertisements and propaganda encouraging them to submit their biological samples and to have a complete copy of their genetic information. A variety of reasons can lead a person to submit this information to a big database. In some cases, this kind of genetic testing is done only for recreational purposes and without meeting proper standards concerning the protection of privacy. Bad use of this information can lead to various forms of genetic discrimination. Genetic information involves not just an individual, but also those who share his or her genes. Its use may affect not only the person whose genome has been collected, but also the related family. My goal in this paper is to address the problems created by recreational genomics.
format Artículo
author Lafferrière, Jorge Nicolás
author_facet Lafferrière, Jorge Nicolás
author_sort Lafferrière, Jorge Nicolás
title Protecting privacy and family life in the era of recreational genetics and big data
title_short Protecting privacy and family life in the era of recreational genetics and big data
title_full Protecting privacy and family life in the era of recreational genetics and big data
title_fullStr Protecting privacy and family life in the era of recreational genetics and big data
title_full_unstemmed Protecting privacy and family life in the era of recreational genetics and big data
title_sort protecting privacy and family life in the era of recreational genetics and big data
publisher William S. Hein & Co., Inc.
publishDate 2019
url https://repositorio.uca.edu.ar/handle/123456789/3131
work_keys_str_mv AT lafferrierejorgenicolas protectingprivacyandfamilylifeintheeraofrecreationalgeneticsandbigdata
bdutipo_str Repositorios
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