Properties of the CP-QOL-PCQ to measure health-related quality of life in children and adolescents with cerebral palsy in Argentina
Introduction: The impact of cerebral palsy (CP) on quality of life requires the incorporation of subjective assessments of health, functional status, and well-being. A specific health-related quality of life (HRQoL) measure for CP is the Australian CP-QOL questionnaire, whose version for caregivers...
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| Formato: | Artículo revista |
| Lenguaje: | Español |
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Universidad Nacional Córdoba. Facultad de Ciencias Médicas. Secretaria de Ciencia y Tecnología
2023
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| Acceso en línea: | https://revistas.unc.edu.ar/index.php/med/article/view/40042 |
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I10-R327-article-40042 |
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Universidad Nacional de Córdoba |
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R-327 |
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Revista de la Facultad de Ciencias Médicas de Córdoba |
| language |
Español |
| format |
Artículo revista |
| topic |
parálisis cerebral niños con discapacidad adolescencia encuestas y cuestionarios confiabilidad y validez cerebral palsy disabled children adolescence surveys and questionnaires reliability and validity paralisia cerebral crianças com deficiência adolescência inquéritos e questionários confiabilidade e validade |
| spellingShingle |
parálisis cerebral niños con discapacidad adolescencia encuestas y cuestionarios confiabilidad y validez cerebral palsy disabled children adolescence surveys and questionnaires reliability and validity paralisia cerebral crianças com deficiência adolescência inquéritos e questionários confiabilidade e validade Berra, Silvina Herrera Sterren, Natalia Sánchez Rosas, Javier Properties of the CP-QOL-PCQ to measure health-related quality of life in children and adolescents with cerebral palsy in Argentina |
| topic_facet |
parálisis cerebral niños con discapacidad adolescencia encuestas y cuestionarios confiabilidad y validez cerebral palsy disabled children adolescence surveys and questionnaires reliability and validity paralisia cerebral crianças com deficiência adolescência inquéritos e questionários confiabilidade e validade |
| author |
Berra, Silvina Herrera Sterren, Natalia Sánchez Rosas, Javier |
| author_facet |
Berra, Silvina Herrera Sterren, Natalia Sánchez Rosas, Javier |
| author_sort |
Berra, Silvina |
| title |
Properties of the CP-QOL-PCQ to measure health-related quality of life in children and adolescents with cerebral palsy in Argentina |
| title_short |
Properties of the CP-QOL-PCQ to measure health-related quality of life in children and adolescents with cerebral palsy in Argentina |
| title_full |
Properties of the CP-QOL-PCQ to measure health-related quality of life in children and adolescents with cerebral palsy in Argentina |
| title_fullStr |
Properties of the CP-QOL-PCQ to measure health-related quality of life in children and adolescents with cerebral palsy in Argentina |
| title_full_unstemmed |
Properties of the CP-QOL-PCQ to measure health-related quality of life in children and adolescents with cerebral palsy in Argentina |
| title_sort |
properties of the cp-qol-pcq to measure health-related quality of life in children and adolescents with cerebral palsy in argentina |
| description |
Introduction: The impact of cerebral palsy (CP) on quality of life requires the incorporation of subjective assessments of health, functional status, and well-being. A specific health-related quality of life (HRQoL) measure for CP is the Australian CP-QOL questionnaire, whose version for caregivers (PCQ) was adapted in Argentina. This study aimed to achieve the final structure and evaluate the reliability and validity of the CP-QOL-PCQ for the Argentine child and adolescent population.
Methods: 100 caregivers of people from 3 to 24 years old with a diagnosis of CP from Argentina participated. In addition to the CP-QOL-PCQ, the KIDSCREEN-27 questionnaire was applied. Analysis of response distributions of all items, inter-item correlations, and internal consistency of the scales were performed using Cronbach's alpha. The convergent validity of the instrument was tested through the correlation with scales of similar content from the KIDSCREEN and through a priori hypotheses in groups of different ages and functional impairment.
Results: A final structure of the CP-QOL-PCQ was achieved with 8 multidimensional scales, with satisfactory inter-item correlations (>0.30) and internal consistency (>0.70). Moderate and high correlations (r>0.30) were obtained between similar dimensions of the CP-QOL-PCQ and the KIDSCREEN with similar concepts. Higher HRQoL scores were confirmed at a younger age and at a lower level of functional impairment (Cohen's d >0.20).
Conclusion: This provides evidence of reliability and validity to be expected for a HRQoL measurement instrument that can be implemented in the Argentine child and adolescent population with CP. |
| publisher |
Universidad Nacional Córdoba. Facultad de Ciencias Médicas. Secretaria de Ciencia y Tecnología |
| publishDate |
2023 |
| url |
https://revistas.unc.edu.ar/index.php/med/article/view/40042 |
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I10-R327-article-400422023-12-01T19:41:10Z Properties of the CP-QOL-PCQ to measure health-related quality of life in children and adolescents with cerebral palsy in Argentina Propiedades del CP-QOL-PCQ para medir calidad de vida relacionada con la salud en niños, niñas y adolescentes con parálisis cerebral en Argentina Propriedades do CP-QOL-PCQ para medir a qualidade de vida relacionada à saúde em crianças e adolescentes com paralisia cerebral na Argentina Berra, Silvina Herrera Sterren, Natalia Sánchez Rosas, Javier parálisis cerebral niños con discapacidad adolescencia encuestas y cuestionarios confiabilidad y validez cerebral palsy disabled children adolescence surveys and questionnaires reliability and validity paralisia cerebral crianças com deficiência adolescência inquéritos e questionários confiabilidade e validade Introduction: The impact of cerebral palsy (CP) on quality of life requires the incorporation of subjective assessments of health, functional status, and well-being. A specific health-related quality of life (HRQoL) measure for CP is the Australian CP-QOL questionnaire, whose version for caregivers (PCQ) was adapted in Argentina. This study aimed to achieve the final structure and evaluate the reliability and validity of the CP-QOL-PCQ for the Argentine child and adolescent population. Methods: 100 caregivers of people from 3 to 24 years old with a diagnosis of CP from Argentina participated. In addition to the CP-QOL-PCQ, the KIDSCREEN-27 questionnaire was applied. Analysis of response distributions of all items, inter-item correlations, and internal consistency of the scales were performed using Cronbach's alpha. The convergent validity of the instrument was tested through the correlation with scales of similar content from the KIDSCREEN and through a priori hypotheses in groups of different ages and functional impairment. Results: A final structure of the CP-QOL-PCQ was achieved with 8 multidimensional scales, with satisfactory inter-item correlations (>0.30) and internal consistency (>0.70). Moderate and high correlations (r>0.30) were obtained between similar dimensions of the CP-QOL-PCQ and the KIDSCREEN with similar concepts. Higher HRQoL scores were confirmed at a younger age and at a lower level of functional impairment (Cohen's d >0.20). Conclusion: This provides evidence of reliability and validity to be expected for a HRQoL measurement instrument that can be implemented in the Argentine child and adolescent population with CP. Introducción: El impacto de la parálisis cerebral (PC) en la calidad de vida exige la incorporación de valoraciones subjetivas de la salud, el estado funcional y el bienestar. Una medida de calidad de vida relacionada con la salud (CVRS) específica para PC es el cuestionario australiano CP-QOL, cuya versión para cuidadores (PCQ) fue adaptada en Argentina. Este estudio se propuso lograr la estructura final y evaluar la fiabilidad y validez del CP-QOL-PCQ para población infantil y adolescente argentina. Métodos: Participaron 100 cuidadores de personas de 3 a 24 años con diagnóstico de PC de Argentina. Además del CP-QOL-PCQ se aplicó el cuestionario KIDSCREEN-27. Se realizaron análisis de distribuciones de respuesta de todos los ítems, correlaciones inter-ítems y consistencia interna de las escalas mediante el alfa de Cronbach. Se probó la validez convergente del instrumento mediante la correlación con escalas de similar contenido del KIDSCREEN y mediante hipótesis a priori en grupos de diferente edad y afectación de la funcionalidad. Resultados: Se logró una estructura final del CP-QOL-PCQ con 8 escalas multidimensionales, con satisfactorias correlaciones inter-ítems satisfactorias (>0.30) y consistencia interna (>0.70). Se obtuvieron correlaciones moderadas y altas (r>0.30) entre dimensiones similares del CP-QOL-PCQ y del KIDSCREEN con conceptos similares. Se confirmaron mayores puntuaciones de CVRS a menor edad y a menor nivel de afectación funcional (d de Cohen >0,20). Conclusión: Este trabajo aporta evidencias de fiabilidad y validez esperables para un instrumento de medición de la CVRS que puede ser implementado en población infantil y adolescente argentina con PC. Introdução: O impacto da paralisia cerebral (PC) na qualidade de vida requer a incorporação de avaliações subjetivas de saúde, estado funcional e bem-estar. Uma medida específica de qualidade de vida relacionada à saúde (QVRS) para PC é o questionário australiano CP-QOL, cuja versão para cuidadores (PCQ) foi adaptada na Argentina. Este estudo teve como objetivo alcançar a estrutura final e avaliar a confiabilidade e validade do CP-QOL-PCQ para a população infanto-juvenil argentina. Métodos: participaram 100 cuidadores de pessoas de 3 a 24 anos com diagnóstico de PC da Argentina. Além do CP-QOL-PCQ, foi aplicado o questionário KIDSCREEN-27. A análise das distribuições de resposta de todos os itens, correlações entre itens e consistência interna das escalas foram realizadas usando o alfa de Cronbach. A validade convergente do instrumento foi testada por meio da correlação com escalas de conteúdo semelhante do KIDSCREEN e por hipóteses a priori em grupos de diferentes idades e comprometimento funcional. Resultados: Obteve-se uma estrutura final do CP-QOL-PCQ com 8 escalas multidimensionais, com correlações interitem satisfatórias (>0,30) e consistência interna (>0,70). Correlações moderadas e altas (r>0,30) foram obtidas entre dimensões semelhantes do CP-QOL-PCQ e do KIDSCREEN com conceitos semelhantes. Maiores escores de QVRS foram confirmados em idade mais jovem e em menor nível de comprometimento funcional (d de Cohen >0,20). Conclusão: Este trabalho fornece evidências de confiabilidade e validade esperadas para um instrumento de medição de QVRS que pode ser implementado na população de crianças e adolescentes argentinos com PC. Universidad Nacional Córdoba. Facultad de Ciencias Médicas. Secretaria de Ciencia y Tecnología 2023-09-29 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Texto application/pdf text/html https://revistas.unc.edu.ar/index.php/med/article/view/40042 10.31053/1853.0605.v80.n3.40042 Revista de la Facultad de Ciencias Médicas de Córdoba.; Vol. 80 No. 3 (2023); 188-204 Revista de la Facultad de Ciencias Médicas de Córdoba; Vol. 80 Núm. 3 (2023); 188-204 Revista da Faculdade de Ciências Médicas de Córdoba; v. 80 n. 3 (2023); 188-204 1853-0605 0014-6722 10.31053/1853.0605.v80.n3 spa https://revistas.unc.edu.ar/index.php/med/article/view/40042/42605 https://revistas.unc.edu.ar/index.php/med/article/view/40042/42428 Derechos de autor 2023 Universidad Nacional de Córdoba http://creativecommons.org/licenses/by-nc/4.0 |