Daily practices of the informal career of ambulatory oncological patients. Year 2019

Oncological disease is characterized by a profound alteration in the regulation of cell growth and / or death, with the ability to spread remotely. During their treatment they require the help of caregivers who are often their own family, people from their environment who voluntarily assume the role...

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Autores principales: Avalos, Úrsula, Bruno, César, Cartaman, Noelia, Auchter, Mónica, Gómez, Carolina
Formato: Artículo revista
Lenguaje:Español
Publicado: Sanatorio Allende. Departamento de enfermería 2020
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Acceso en línea:https://revistas.unc.edu.ar/index.php/notasenf/article/view/29158
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institution Universidad Nacional de Córdoba
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container_title_str Notas de Enfermería
language Español
format Artículo revista
topic Neoplasms
Caregivers
Activities of Daily Living
Cáncer
Neoplasias
cuidador familiar
Cuidadores
actividades de la vida diaria
Actividades Cotidianas
Neoplasias
Cuidadores
Atividades Cotidianas
spellingShingle Neoplasms
Caregivers
Activities of Daily Living
Cáncer
Neoplasias
cuidador familiar
Cuidadores
actividades de la vida diaria
Actividades Cotidianas
Neoplasias
Cuidadores
Atividades Cotidianas
Avalos, Úrsula
Bruno, César
Cartaman, Noelia
Auchter, Mónica
Gómez, Carolina
Daily practices of the informal career of ambulatory oncological patients. Year 2019
topic_facet Neoplasms
Caregivers
Activities of Daily Living
Cáncer
Neoplasias
cuidador familiar
Cuidadores
actividades de la vida diaria
Actividades Cotidianas
Neoplasias
Cuidadores
Atividades Cotidianas
author Avalos, Úrsula
Bruno, César
Cartaman, Noelia
Auchter, Mónica
Gómez, Carolina
author_facet Avalos, Úrsula
Bruno, César
Cartaman, Noelia
Auchter, Mónica
Gómez, Carolina
author_sort Avalos, Úrsula
title Daily practices of the informal career of ambulatory oncological patients. Year 2019
title_short Daily practices of the informal career of ambulatory oncological patients. Year 2019
title_full Daily practices of the informal career of ambulatory oncological patients. Year 2019
title_fullStr Daily practices of the informal career of ambulatory oncological patients. Year 2019
title_full_unstemmed Daily practices of the informal career of ambulatory oncological patients. Year 2019
title_sort daily practices of the informal career of ambulatory oncological patients. year 2019
description Oncological disease is characterized by a profound alteration in the regulation of cell growth and / or death, with the ability to spread remotely. During their treatment they require the help of caregivers who are often their own family, people from their environment who voluntarily assume the role of responsible in a broad sense and are willing to make decisions for and by the patient. Therefore, this study sought to describe the care practices carried out daily by the informal caregiver of assisted outpatient oncology patients in a public hospital in the city of Corrientes during 2019. With a descriptive, cross-sectional and observational design, the sample was made up of informal caregivers who met criteria of inclusion, exclusion and elimination previously defined. Data collection was carried out between August to October 2019 by applying a questionnaire to 90 informal caregivers. The average age was 43 years, 76% were women, in relation 44% were children and 24% were couples. On average they dedicated 14 hours a day to care, with 47% doing it in the three shifts. 42% were dependent workers, 26% housewives, 12% students, 7% retired; freelancers 9% and 4% unemployed. The activity they performed most frequently was accompaniment to clinical consultations with 81%. These caregivers, in addition to developing daily practices with their sick family member, also fulfilled work and study obligations. The existence of this disease affects the life not only of those who suffer it directly but also that of the family and immediately that of the informal caregiver. The repercussions can be minimized if they receive adequate support from the nursing staff, including not only the sick person but also the informal caregiver in their care.
publisher Sanatorio Allende. Departamento de enfermería
publishDate 2020
url https://revistas.unc.edu.ar/index.php/notasenf/article/view/29158
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spelling I10-R322-article-291582020-09-07T15:44:19Z Daily practices of the informal career of ambulatory oncological patients. Year 2019 Prácticas diarias del cuidador informal de pacientes oncológicos ambulatorios. Año 2019 Práticas diárias da carreira informal de pacientes oncológicos ambulatórios. Ano 2019 Avalos, Úrsula Bruno, César Cartaman, Noelia Auchter, Mónica Gómez, Carolina Neoplasms Caregivers Activities of Daily Living Cáncer Neoplasias cuidador familiar Cuidadores actividades de la vida diaria Actividades Cotidianas Neoplasias Cuidadores Atividades Cotidianas Oncological disease is characterized by a profound alteration in the regulation of cell growth and / or death, with the ability to spread remotely. During their treatment they require the help of caregivers who are often their own family, people from their environment who voluntarily assume the role of responsible in a broad sense and are willing to make decisions for and by the patient. Therefore, this study sought to describe the care practices carried out daily by the informal caregiver of assisted outpatient oncology patients in a public hospital in the city of Corrientes during 2019. With a descriptive, cross-sectional and observational design, the sample was made up of informal caregivers who met criteria of inclusion, exclusion and elimination previously defined. Data collection was carried out between August to October 2019 by applying a questionnaire to 90 informal caregivers. The average age was 43 years, 76% were women, in relation 44% were children and 24% were couples. On average they dedicated 14 hours a day to care, with 47% doing it in the three shifts. 42% were dependent workers, 26% housewives, 12% students, 7% retired; freelancers 9% and 4% unemployed. The activity they performed most frequently was accompaniment to clinical consultations with 81%. These caregivers, in addition to developing daily practices with their sick family member, also fulfilled work and study obligations. The existence of this disease affects the life not only of those who suffer it directly but also that of the family and immediately that of the informal caregiver. The repercussions can be minimized if they receive adequate support from the nursing staff, including not only the sick person but also the informal caregiver in their care. La enfermedad oncológica se caracteriza por una profunda alteración de la regulación del crecimiento y/o muerte celular, con capacidad de diseminarse a distancia. Durante su tratamiento requieren de la ayuda de cuidadoresque muchas veces son los propios familiares, personas de su entorno que asume voluntariamente el papel de responsable en un sentido amplio y está dispuesto a tomar decisiones por y para el enfermo. Por ello, este estudio buscó describir las prácticasde cuidado realizadas diariamente por el cuidador informal de pacientes oncológicos ambulatorios asistidos un hospital público de la ciudad de Corrientes durante 2019. Con diseño descriptivo, transversal y observacional la muestra se conformó con cuidadores informales que reunían criterios de inclusión, exclusión y eliminación definidos previamente. La recolección de datos se realizó entre agosto a octubre de 2019 mediante aplicación de un cuestionario a 90 cuidadores informales. La edad promedio fue 43 años, 76% eran mujeres, en parentesco 44% eran hijos/as y 24% las parejas. En promedio dedicaban 14hs diarias alos cuidados, con un 47% que lo hacía en los tres turnos.El 42% eran trabajadores dependientes, 26% amas de casa,12% estudiantes, jubilados 7%; trabajadores independientes 9% y 4% desocupados.La actividad que realizaban con mayor frecuencia fue el acompañamiento a las consultas clínicas con un 81%. Estos cuidadores además de desarrollar prácticas diarias con su familiar enfermo también cumplían obligaciones de trabajo y estudio. La existencia de esta enfermedad afecta la vida no solo de quien la padece de manera directa sino también la de la familia y de manera inmediata la del cuidador informal. Las repercusiones pueden minimizarse si reciben un soporte adecuado por parte de enfermería, incluyendo en sus cuidados no solo a la persona enferma sino también al cuidador informal. A doença oncológica é caracterizada por uma alteração profunda na regulação do crescimento e / ou morte celular, com a capacidade de se espalhar remotamente. Durante o tratamento, eles precisam da ajuda de cuidadores, que costumam ser sua própria família, pessoas em seu ambiente que voluntariamente assumem o papel de serem responsáveis em um sentido amplo e estão dispostos a tomar decisões para e pelo paciente. Portanto, este estudo procurou descrever as práticas de cuidado realizadas diariamente pelo cuidador informal de pacientes oncológicos ambulatoriais assistidos em um hospital público da cidade de Corrientes durante o ano de 2019. Com um desenho descritivo, transversal e observacional, a amostra foi composta por cuidadores informais que atenderam aos critérios inclusão, exclusão e eliminação previamente definidas. A coleta de dados foi realizada entre agosto e outubro de 2019, aplicando um questionário a 90 cuidadores informais. A idade média foi de 43 anos, 76% eram mulheres, em relação 44% eram crianças e 24% eram casais. Em média, eles dedicaram 14 horas por dia aos cuidados, sendo 47% nos três turnos. 42% eram trabalhadores dependentes, 26% donas de casa, 12% estudantes, 7% aposentados; freelancers 9% e 4% desempregados. A atividade que realizaram com maior frequência foi o acompanhamento de consultas clínicas com 81%. Esses cuidadores, além de desenvolverem práticas diárias com seus familiares doentes, também cumpriam as obrigações de trabalho e estudo. A existência dessa doença afeta a vida não apenas daqueles que a sofrem diretamente, mas também da família e imediatamente do cuidador informal. As repercussões podem ser minimizadas se eles receberem apoio adequado da equipe de enfermagem, incluindo em seus cuidados não apenas a pessoa doente, mas também o cuidador informal Sanatorio Allende. Departamento de enfermería 2020-06-25 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf https://revistas.unc.edu.ar/index.php/notasenf/article/view/29158 10.59843/2618-3692.v20.n35.29158 Notas de Enfermería; Vol. 20 Núm. 35 (2020): Notas de Enfermería; 39-47 2618-3692 1668-8821 10.59843/2618-3692.v20.n35 spa https://revistas.unc.edu.ar/index.php/notasenf/article/view/29158/29990 Derechos de autor 2020 Sanatorio Allende https://creativecommons.org/licenses/by-nc/4.0