Big data in genomics : ethical challenges and risks [Separata] /

Genomic information is a class of Big Data in expanding use thanks to technological developments. Here, we review three categories of ethical risks and challenges associated with genomic information: privacy issues, the management of incidental findings, and challenges in data storage and sharing. F...

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Guardado en:
Detalles Bibliográficos
Autor principal: Via, Marc
Formato: Artículo
Lenguaje:Inglés
Materias:
BANCOS DE DATOS
BIG DATA
PRIVACIDAD
GENETICA
PROTECCION DE DATOS
Aporte de:Registro referencial: Solicitar el recurso aquí
Biblioteca Cs. Sociales E. Faletto (FLACSO) de FLACSO. Sede Académica Argentina
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041 1 |a eng 
100 |9 27389  |a Via, Marc 
245 1 0 |a Big data in genomics :   |b ethical challenges and risks [Separata] /   |c Marc Via  |h DIG 
300 |a pp. 33-45 
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520 |a Genomic information is a class of Big Data in expanding use thanks to technological developments. Here, we review three categories of ethical risks and challenges associated with genomic information: privacy issues, the management of incidental findings, and challenges in data storage and sharing. First, we need to implement strong mechanisms to protect privacy, but genomic data faces specific risks and we need to acknowledge the possibility of re-identification. Proper usage of genomic information has to be regulated, including recommendations on incidental finding management. Also, clear policies for data sharing and explicit efforts to promote central repositories of genomic data should be established. However, technology and new applications of genetic information will develop fast and we should anticipate potential new risks. 
650 0 |a  BANCOS DE DATOS  |9 4277 
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650 0 |a PRIVACIDAD  |9 10195 
650 0 |a GENETICA  |9 2738 
650 4 |a PROTECCION DE DATOS  |9 25252 
690 |a BIOETICA  |9 2962 
773 0 |d Barcelona : Observatorio de Bioética y Derecho, FLACSO. Programa Argentina, 2017  |g no. 41  |t Revista de bioética y derecho & Perspectivas bioéticas  |x 1886-5887 
942 |c ART 

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